President Obama keeps referring to the One Little Star Fish story. This is a webpage I made awhile back including that story. It is no longer valid, I believe Miguel did receive his liver transplant but I have no other updated data. thinkingblue

 

THE STAR FISH

There was a young man walking down a deserted beach just before dawn. In the distance he saw a frail old man. As he approached the old man, he saw him picking up stranded starfish and throwing them back into the sea.

The young man gazed in wonder as the old man again and again threw the small starfish from the sand into the water. He asked, "Old man, why do you spend so much energy doing what seems to be a waste of time?"

The old man explained that the stranded starfish would die if left in the morning sun.

"But there must be thousands of beaches and millions of starfish!" exclaimed the young man. "How can you make any difference?"

The old man looked down at the small starfish in his hand and as he threw it to the safety of the sea, he said, "I make a difference to this one."

 

 

 

To whom it may concern, please help... 

 

 

I have been serving as a Peace Corps volunteer for 2 1/2 years in Panama, Central America. I worked specifically in a community in the province of Colon. 

I am contacting you because in the community where I live and work there is a boy , Miguel, suffering from a congenitive liver disease, Caroli. 

His situation is growing worse every month as he is prone to infections but the doctors say he can take no medications (or can't afford them) He comes from an economically poor family, has no resources or family that knows how to help him. 

They diagnosed this problem when he was 8 and he is now 15. He has been in and out of the hospital here but they cannot help him as his problem is so far advanced ... the doctors say the only thing that can save him is a liver transplant. 

However, they do not offer this type of surgery in Central America (maybe in Colombia?) and even if they did he has no money to pay for it (his family has no social security or insurance). 

So, I am looking for some way that Miguel can receive a liver transplant. I have no idea where to start, who to contact, I am looking for any leads whatsoever. Most importantly I need to find out how to get a non-resident alien a liver transplant. I need to find a hospital that would perform the surgery as a charity.

 Does anyone know how this works? How do I get him on a donor list?  Please, if you can help in any way, even to put me in touch with another organization , it would be greatly, greatly appreciated. 

He is a very bright , intelligent child who dreams of being a doctor someday. I have faith that there is a way that he can get help. I wanted to send a summary of what he suffers from:

 Diagnostic impression of Miguel Rodriguez Caroli disease: congenital liver fibrosis, esophagal varices, hemophilia B, Portal hypertension, cholangitis/colelitiasis,cirrhotic liver, upper gastro intestinal bleeding he is allergic to penicillin, had his gall bladder removed in '93, and is O+

All his information is in Spanish, but I will have it translated and send it to you. I will do anything to help. I hope to hear from you. 

Thank you so much for anyway you can help 

Sincerely,

 Kristen Wiebe 

PCV Panama

 

 

Please Click on pictures

 

 

 

Click Here To Download "Healing Angel"

May The Blessing Of Light be Upon You.
Light On The Outside, Light On the Inside.
With God's Sunlight Shining On You
May Your heart Glow With Warmth
Like A Turf Fire
That Welcomes Friends And Strangers Alike.
May The Light Of The Lord
Shine From Your Eyes
Like A Candle In The Window
Welcoming The Weary Traveler.
May The Blessing Of God's Soft Rain
Be On You,
Falling Gently On Your Head.
Refreshing Your Soul
With The Sweetness Of Little Flowers
Newly Blooming.
May The Strength Of The Winds Of Heaven Bless You,
Carrying The Rain
To Wash Your Spirit Clean
Sparking After In The Sunlight.
May The Blessing Of God's Earth
Be On You.
And As You Walk the Roads,
May You Always Have A Kind Word
For Those You Meet.

May You Understand the Strength,
And Power Of God
In A Thunderstorm And Winter.
And The Quiet Beauty Of Creation,
In The Calm Of A Summer Sunset;
And May You Come To Realize.
That Insignificant As You May Seem,
In This Great Universe
You Are An Important Part Of God's Plan.
May He Watch Over You
And Keep You Safe From Harm.

Roma Downey & Phil Coulter
From Her CD:Healing Angel

 

 

 

More links to understanding Caroli Disease

CAROLI DISEASE

EMEDICINE .COM

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

ackground by Ryan

setstats